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Parallel session 3, Strand 1
Theme: Looking beyond our direct clients


The role of participants


Citizen Research


Inclusive Research?


The role of research in encouraging democratic participation


Parallel session 3, strand 2
Theme: GSR and its research at the leading edge


Maximising response and minimising burden


Action Research


Parallel session 3, Strand 1
Theme: Looking beyond our direct clients


The role of participants

Ethical research - the voice of research participants - Jane Lewis, National Centre for Social Research

Background
This research was conducted to understand research participants’ concept of ethics and how it related to their experience of taking part in interviews.

Main Issues

Questions from the audience

Children’s participation - the researchers of tomorrow - Jennifer Shepherd, Welsh Assembly Government

Background
This presentation looked at the evaluation of the work of the Children’s Commissioner for Wales and also a project to support children in primary school to design and carry out their own research. Both projects consider how research can be developed to include the child’s perspective and have provided useful insights for researchers and the effective involvement of children in research.

Main Issue
The Children’s Commissioner project wanted to involve children in the design of the evaluation. It has been able to develop a design that children have agreed and want to be involved in. To facilitate this it was necessary to provide skills and knowledge to a broad range of abilities of children and young people, to help them make informed decisions. The resources required with this approach raise questions about the value of involving children when a similar research design may have been established without their participation

The Young Researchers work also involved providing children with skills and knowledge, this time to develop their own research projects. It has enabled children to take responsibility for a project of their own, though was reliant on supervision and guidance from teachers, which may have influenced the work that the children have done.

Questions from the audience
Children’s involvement with research relied on their voluntary participation, in addition to their statutory school work. This commitment is likely to have affected the type of children volunteering for the project.

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Citizen Research

‘Public perceptions in a devolved Scotland’, Iain MacAllister, Scottish Executive

Iain MacAllister gave an overview of the Scottish Social Attitudes Survey (SSAS), provided results of the 2004 survey, and some comments on the 2005 survey. The main points were:

Measuring the performance of public services: capturing citizens’ experiences’, Leighton Phillips and Richard Thurston, Welsh Assembly Government

Leighton Phillips and Richard Thurston asked the question “How good are we at capturing citizens’ views of public services and using them to drive improvements?”, and outlined research being undertaken by the public services reform unit - ‘Making the Connections’ - and the Office of the Chief Social Research Officer at the Welsh Assembly Government. The main points were:

‘The Citizenship Survey’, Robert Rutherfoord, DCLG

Robert Rutherfoord presented an overview and some results from the 2005 Citizenship Survey. The main points were:

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Inclusive Research?

Developing new survey methods for cross-cultural research - Liz Pendry, Home Office

The Longitudinal Survey of Refugees is a new survey that will provide evidence on the nature and extent of integration of different groups of refugees; the process by which integration is achieved; and what influences, helps and hinders the integration of refugees into UK society.

A questionnaire has been developed using National Statistics Harmonised questions, questions from other national and international surveys; and themes from research with the Gateway Protection Programme Refugees.

The survey needs to be inclusive for three reasons: to ensure representativeness, minimise any bias and ensure validity of results. To ensure inclusiveness, interviews will be carried out in the first language of the refugee. Where this is not possible, interviews will be carried out using interpreters with the key terminology being translated. It is proposed that cross-culturally equivalent translated questionnaires be developed using TAT - Translation, Adaptation and Tailoring. This approach overcomes some of the problems encountered with traditional translation methods (such as translation/back-translation) and realises more cross-culturally equivalent translations.

Before the translation, cognitive testing of the questionnaire was carried out. This approach offers a way of focussing on how people answer questions, explores the thought processes involved and identifies covert as well as overt problems with the questions. The researchers concluded that conducting cognitive interviews has value, even where the participants have limited English and was also useful in helping to identify any cultural and population specific issues with the questions.

People with disabilities in Northern Ireland - how many are there? - Carly Niblock and Amanda Filmer, Northern Ireland Statistics and Research Agency

The project followed a review of existing sources of information on disability in Northern Ireland, which recommended a comprehensive survey on the prevalence of disability in Northern Ireland and the experiences and socio-economic circumstances of people with disabilities in Northern Ireland. In response, the project aimed to provide an up-to-date, accurate picture of the type, severity and prevalence of disability, the socio-economic circumstances of people with disabilities and the experiences and barriers faced by people with disabilities. The purpose of undertaking the project is to provide information to policy-makers and providers delivering services to people with disabilities.

To achieve this aim a survey was developed with the input of users and potential users of such information. This included groups representing people with disabilities.

Developing the survey included research into international current practice, including an assessment of techniques and definitions. The survey was based on the International Classification of Functioning, Disability and Health (ICF) which considers disability in terms of the interaction between an individual with a health condition and the barriers and facilitators in the surrounding environment. The approach has been adopted by a number of nations and has the advantages of being flexible; being broad in scope, combining social and medical model of disability; the possibility of comparison across nations; and the approach is endorsed by the World Health Organisation and it’s member states. Questions were based on international surveys and ONS harmonised questions to facilitate comparability.

The survey was designed to respond to diverse customer needs and to be inclusive. Inclusiveness was viewed in terms of the covering essential topic areas, ensuring the relevant people were involved from the start and ensuring the language used was in the questionnaire was ‘plain English’. The survey targets adults and children in both private households and communal establishments to ensure inclusiveness. Communal establishments are more likely to have a higher incidence of people with disability than are private households. It was necessary to tailor three separate questionnaires for adults, children and residents of communal establishments, as the needs and experiences of these populations may be quite different.

There is no sampling frame containing our target sample. The target population had to be screened from the whole population of private households and communal establishments. The survey adopted a sampling approach used in Canada which used two filtering questions to identify a sample group based on ICF principles. The questions from the Canadian Participation and Activity Limitation Survey were piloted to test their reliability on identifying our target sample . In order to measure false negatives a more detailed follow-up questionnaire was asked of all households who responded negatively to the two filter questions. A false negative is someone who incorrectly screened out when they actually have a difficulty and should be screened in. The survey was administered using a mixed method approach. Face-to-face and telephone interviews were used. The researchers found using a mixed method approach offered flexible options for people to participate in the survey and provided the researchers the opportunity of contacting more people.

The results of the pilot suggested that when the two screening questions were applied to a NI population using the mixed mode approach they could not be relied upon to identify the target sample.

In the absence of any other quick way of identifying our target sample we started focussing on the structured follow up questionnaire used in the pilot as a possible screening questionnaire, we also consulted widely with the disability sector to identify 15 categories which the structured screening questionnaire was developed around. After testing these questions we decided to use the structured screening questionnaire as it was most likely to yield a representative and inclusive target sample.

The Main Survey of Private Households is currently in the field with 85% of fieldwork completed to date.

The Communal establishment strand of the survey is yet to start as we are awaiting ethical approval first before carrying out research in NHS ran establishments.

Headline results for the private household strand should be released early 2007.

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The role of research in encouraging democratic participation

Putting stakeholders on the map - Claire Hinchcliffe, Scottish Executive

Claire’s presentation discussed what stakeholders are, how they might be identified, and how to prioritise and map them by way of their interest and influence. Key points included:

The role of social research in developing the civil rights of disabled people - Grahame Whitfield, Office for Disability Issues

Grahame’s presentation covered the role of the Office for Disability Issues (ODI), how evidence underpins their work and the importance of the forthcoming Equality Duty. Key points were:

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Parallel session 3, strand 2
Theme: GSR and its research at the leading edge


Maximising response and minimising burden

Researching large complex organisations - what works? - Ellen Springall, HM Revenue and Customs

The ‘Taking Part’ Survey: An experiment using incentives - Rebbecca Aust, Department for Culture, Media and Sport and Joel Williams, BMRB

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Action Research

Connecting policy, practice and community through action research: Lessons from the Sustainable Health Action Research Programme in Wales - Kaori Onoda, Welsh Assembly Government, Professor Steve Cropper, Keele University and Professor Robert Moore, Liverpool university, SHARP project representative.

Kaori Onoda (Welsh Assembly government), Prof. Steve Cropper (Keele University) and Prof. Robert Moore (Liverpool University) offered different perspectives on the Sustainable Health Action Research Programme (SHARP) in Wales, under the title ‘connecting policy, practice and community through action research’. Kaori highlighted some organisational and policy principles that had proved successful for the central co-ordination team. The fact that the programme was driven by research rather than policy or service delivery and had a primary aim of learning rather than demonstrating impact, lead to flexibility and openness and allowed for learning through interventions not working. A supportive but non-intrusive model of central management allowed a wide variety of projects to develop.

Robert identified the strengths of the programme as its ‘unprecedented freedom’, generating an imaginative, innovative and broad range of projects. He used a SHARP project based on a single housing estate to illustrate his understanding of action research as ‘a very grounded and getting up close’ to actions and processes behind social patterns that are familiar at the macro level. He emphasised the need for action researchers to see themselves as part of the researched population and to try to make changes, rather than as a traditional detached observer. Total immersion was essential to be able to identify the action needed to combat entrenched processes of social exclusion. He advocated long term community level intervention based on small steps, leading to growth in confidence, acquisition of skills and increased human and social capital. He noted that an apparent lack of change on the ground can disguise the fact that individuals have moved on.

Steve provided the evaluator’s view, discussing some of the tensions involved in assessing complex community interventions within a flexible programme of action research. Exploration of processes, identification of underlying factors and assessment of the responsiveness of change, was as valuable as data on inputs and outcomes. Specific settings and projects meant findings were not necessarily generalisable, attribution of small-scale change to the programme was problematic, and data was fragmentary, diverse and unpredictable.

The final presentation, on ‘action research as an evaluative method’, was given by Helen Bushell (Welsh Assembly Government) in relation to the evaluation of the Communities First programme. An action research approach, operating through close and frequent contact with all stakeholders, helped to understand structures and relationships and to map changes in a constantly evolving programme. Lessons were fed back during the lifetime of the programme, and resulted in informed decisions being made about changes needed. Key lessons from the evaluation were: the importance of trust in enabling stakeholders to learn from mistakes, rather than hiding or defending these; and the need for documentation and a narrative record of processes and changes that occur on the ‘journey’.

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